I feel so new with this physical illness. You can’t see pain with the naked eye, but you can see it’s effects. Kinda like mental illness. So actually, I should be able to get an understanding on how to live with this shit. Maybe.
With Sjogren’s, like BiPolar, you really never know when an episode is gonna hit, but you can kinda see or know the signs it’s coming.
I’ve got BiPolar’s signals down, for me. I can tell when certain behaviors are leading up to an upswing or a downward spiral. And I will try to head it off with meds or self talk etc. Using my skill set here.
With Sjogren’s, it’s all so new. I have a journal of daily activities. I know if I do too much, I will pay for it later or the next day. But, HOW MUCH IS TOO MUCH ?
I slowly push the limits, but I fear a flare up, so I just do nothing. I hate the pain all over my body. My knees, my back, my hips. I’m sore all over and even laying down hurts.
So I take it easy.
Which leaves me without a life; I fear pain, depression, people, myself, loneliness, love. So many things, it’s not like a phobia, but more like a general fear of everything. Without being specific, maybe its paranoia, but I don’t think so. I don’t think anything is out to get me, so maybe it’s anxiety.
I’m just so tired of illness. No matter what the brand. I’ve been sick with something ever since I was born. Wearing leg braces as a toddler, constant bouts with tonsillitis. Depression.
I see myself dying alone and it scares me. The people I love are either growing up or getting older and as the youngest child, I fear being left behind. Sick and alone. No one knowing I’m dead until the stench in my apartment reaches the street. As the unpaid bills pile up in the mailbox and the neighbors begin to ‘wonder’.
Over 20 years of fighting BiPolar has left me tired and alone. I avoided relationships because I didn’t trust my judgement and I felt I would attract someone who would abuse me. The one time I tried, this came true. Not physical abuse, although there were time it came close, but verbal, emotional and mental abuse.
So, proving myself right. I stayed alone. Isolated and trying to get some sanity back.
When I finally got on an even keel, the bottom dropped out again with the thyroid and the Sjogren’s.
Something new to experience. I’m too old for this.
I don’t know if I have the fight of a 20 year old to battle and come out, O.K. anymore.
But something inside of me, keeps me moving forwards. Although I don’t know why or what it is I’m moving towards.